Associazione Italiana Famiglie VHL


Mercoledì, 18 Aprile 2018 00:00

Webinars on VHL in 2018




Webinars on VHL in 2018

first on April 21 at 2:00 PM

Patient or doctor concerned by the Von Hippel-Lindau (VHL) disease, this is for you!

Taking into account that VHL is a rare disease, VHL Europa (the European Federation of VHL National organizations) is organizing webinars to explain -or refresh memories- the syndrome and its best treatments.

We are going to invite the most prominent specialists in Europe to make different short presentations followed by questions from the audience in order to cover all the aspects of the management of the disease from prevention to treatment in the different organs.

The first webinar will take place on April 21 at 02h PM

Presentation will be on “The importance of annual screening in patients with VHL” by

- Dr. Binderup ( Researcher Univ of Copenhagen) and

- Dr. Zschiedrich (nephrologist and head of the VHL Centre at the university hospital Freiburg/Germany)

Duration: 1 hour approx (presentation + questions/answers)

First you have to register at:

Then, on April 21 at 2:00 PM the connexion address will be sent once dthe participant registers.

Interested? Register and connect and/or invite others to register and connect.

A video will be available on Youtube on the VHL Europa website a few days after the event

Letto 253 volte Ultima modifica il Mercoledì, 18 Aprile 2018 19:20
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     Numeri di telefono:


  Referente nord: 328.811.5931

Referente centro: 347.060.1150

    Referente sud: 331.602.8454

Referente under 30: 329.473.4206 

email: vhl @


Membro di: 


European VHL (Von Hippel-Lindau) Federation





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